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ADVANCE Perspective: Physical Therapy & Rehab Medicine

The Voice of Disease

Published December 23, 2009 9:11 AM by Rebecca Mayer
The Muscular Dystrophy community recently said good-bye to a hero and advocate. Josh Winheld, 31, lost his courageous and inspiring battle with Duchenne Muscular Dystrophy (DMD) just weeks after completing a thesis project on handicapped accessibility for his master's program. Winheld was perhaps best known for his strong will and great determination to keep fighting but also for his role as a loving son, friend and brother.

Winheld chronicled his journey on his blog and in his autobiography, Worth the Ride: My Journey with Duchenne Muscular Dystrophy (iUniverse, 2009). His goal was to educate the masses about his daily experiences of living with DMD and with a disability in general.

Muscular dystrophy is a group of disorders that involve muscle weakness and loss of muscle tissue that get worse over time. Because there is no known cure, treatment is designed to control symptoms. Please check out the cover story in the January 11th issue of ADVANCE that will feature the PT program for patients with Muscular Dystrophy at Our Children's House at Baylor in Dallas, TX.

Have you come in contact with a patient who has become a voice for his disease or illness? How did he communicate his message?

 

posted by Rebecca Mayer

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