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The Busy PT's Guide to Finding Balance

Mystery Diagnosis, Mystery Cure

Published May 11, 2011 4:20 PM by Janey Goude

Our teenage daughter was sick most of the month of April. Despite two different antibiotics, four trips to the doctor and thousands of dollars in tests, we were no closer to a diagnosis or a cure.

All systems checked out normal: throat, ears, lungs and heart. All tests were negative: multiple quick tests as well as definitive tests for mono and strep, CBC, urine and blood cultures, and a contrast CT of the abdomen and pelvis. More specialized testing for rheumatoid arthritis, parvo, Lyme disease and lupus was also negative.

Toward month's end, she developed a new symptom: a painful, swollen throat with difficulty swallowing. Her throat was red with yellow areas - a classic strep throat. The next morning we returned to the physician. She looked at her throat and queried, "What in the world is going on?" Every test had returned normal, yet new symptoms were surfacing.

I shared that about a year ago our son had a negative quick strep, but a positive long strep. So the doctor sent off a long strep test. We'd have to wait the weekend for the results; meanwhile, the doctor gave her a penicillin injection. By that evening her throat swelling was down considerably - you could hear it in her voice. Two days later she was symptom free.

I was certain the long strep test would come back positive. It was negative. There was no indication of a bacterial infection, so there was no reason penicillin should have worked. Furthermore, the two unsuccessful antibiotics she had already received were penicillin derivatives. Neither my daughter's symptoms nor her cure make scientific sense. Yet, nearly two weeks later she is still symptom free.

I'm grateful for medical providers who value their patients' input. As the patient - or parent of a patient - do not underestimate your instinct. As a caregiver, don't discount your client's input. I am grateful for health care practitioners who are willing to treat what they see and not what the tests indicate. Sometimes tests are wrong. I am grateful for praying friends and family. Never rule out the spiritual component of recovery. In this case when you look at the medicine, the prayers make more sense.

4 comments

Thanks, everyone!  She is still healthy.

Great conversation about alternative medicines.  I agree.  We have a wealth of resources at our disposal, but we don't have the only resources.  We do ourselves a disservice by being closed minded to what is out there.

@ Ann - an inexplicable illness happened with Lauren before, but in short order the why was clear.  This time, not so much.  You are right, a good question to ask:-)

@Dean - I have read a lot on alternative medicines, and have even tried some but did not see the grand and glorious results they boasted.  I don't doubt they can be effective, but at this point in my life the cost combined with my inexperience in the area is not an efficacious combination.

@ Jason - the EOBs from insurance came in yesterday.   Oi-vey!  And just when we had finally paid off previous surgeries and a childbirth...

Janey Goude May 17, 2011 9:52 AM

Glad things turned out okay.  We have had similar mysteries that have come and gone in our home and all we are left with is large co-pays and even larger lab bills.  There is some merit to the alternate medicines - I agree with Dean.  

Jason Marketti May 13, 2011 9:11 PM

It is incidents like this (giving a penicillin shot when there seemed to be no indication) that shoots fanatical evidence based practice in the foot. Yes, treatments need to have some scientific back up to them, but when western medicine lets us down, we will seek other cures.

There is a reason folk remedies, herbs, and alternative therapies have a lot of people interested in them. Western medicine does not have all the answers and probably never will.

So glad things are better now.

Cheers, Dean

Dean Metz May 12, 2011 11:54 AM

I'm so glad your daughter is o kay.  What a nightmare to go through for you as well as her. One more thing to ask when we get to heaven. What was that all about?

Ann May 11, 2011 4:52 PM

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