Addressing Reader Issues, Questions and Concerns
A Message to Readers:
Recently, more and more readers have been commenting on the blog and have also been sending me personal emails asking for advice and guidance regarding various populations and disabilities. I absolutely love the feedback and I think the networking that has occurred is invaluable. What I am attempting to do in order to answer as many emails/comments as possible, as well as continue to generate discussion, is to use various inquiries to create posts around the issues that are in question.
My goal is to serve the readers and our profession in the best way I can, which is to connect parents and therapists involved in the EI process. As I stated back in October 2008 when the blog first began, my "hope is that as this blog develops it will become a touchstone for both therapists and parents in search of the delicate balance between educating the mind, strengthening the body and liberating the spirit of a child with special needs".
Thank you for helping to make this hope a reality.
Below are several questions from readers that have been sent to me in recent weeks that I wanted to impart to the public.
Please share your thoughts, comments and expertise with your fellow therapists. Future blogs for August 2009 and beyond will also address many of the topics highlighted below:
- I have been working with a 2 year old girl w/ Cytomeglovirus for about a year. She presents as a child with severe CP. She has limited limb movement, a feeding tube, and has difficulty holding her head up. She vocalizes randomly and occasionally produces a consonant. I think that I am doing everything I possibly can with her (Beckman Oral motor, bubbles, eye gaze choice from field of 2, cause & effect toys, vowel production w/ accompanied gestures, etc), but would love to hear ideas from any of your readers.
- Can anyone help me make a decision about the use of "oral motor therapy (OMT)" when ASHA's stance is that there is no valid research that supports using it? I want to do the best possible therapy for all the children I serve but I'm confused that I'm still hearing about OMT when our national office doesn't support it. Same holds true for sensory integration. There is an OT in the area who has had amazing results working with children on my caseload who have severe autism. Although she has offered to train me at no charge (brushing, swinging, pressure, etc.), I am reluctant to go there as again, ASHA does not approve it and I don't want to end up getting sued for "doing it wrong." Thanks.
- I'd like to see you address the role of the ST as a support/resource person, as counseling is one the primary things our therapists do (in EI).
- I would like to see you talk about (especially for new EI therapists) the devastation and grieving process that families go through when their child is given a diagnosis.